@phdthesis{Markwart2019,
  author    = {Henriette Markwart},
  title     = {Transition von Jugendlichen und jungen Erwachsenen mit chronischen Erkrankungen: Erfassung und Beurteilung von generischen und transitionsbezogenen Konstrukten},
  journal    = {Transition of Adolescents and young adults with chronic conditions: Assessment and Evaluation of generic and transition-specific constructs},
  url       = {https://nbn-resolving.org/urn:nbn:de:gbv:9-opus-35136},
  pages     = {170},
  year      = {2019},
  abstract  = {Transition is described as a purposeful, planned change of children and adolescents with chronic diseases from the child-centered to the adult-centered health care system (Blum et al., 1993). Transition should be a structured, well-implemented, planned and intentional process that empowers the adolescents with chronic conditions, their parents and the health professionals involved to successfully complete the transition from pediatrics to adult medicine (Blum et al., 1993; Huang et al., 2014; Kennedy et al., 2007). Whilst transition should be a structured and well-planned process, a “one size fits all” approach is insufficient for adolescents with chronic conditions as individual differences and preferences of patients need to be considered. A structured, well-planned process, with freedom for individual adjustments, is required (Cameron et al., 2018; van Staa et al., 2011). In conclusion, appropriate instruments for assessing transition-related constructs are needed. Of particular interest is the transition readiness of young people with chronic conditions. In order to be able to assess the individual readiness of a young person with chronic conditions to undergo transition, there is a lack of instruments that are sensitive to change and at the same time generally applicable, so that comparisons between different conditions or areas of care can be performed. Based on this methodological deficit of transition research, the following constructs as well as their operationalization in the context of transition are psychometrically analyzed. The construct of health-related and disease-specific quality of life, satisfaction with care, transition competence, patient activation and patient empowerment were investigated. In summary, the constructs of disease-specific quality of life, satisfaction with care, transition competence, patient activation and patient empowerment are suitable for recording transition-related changes in young people with chronic conditions. Only the assessing of health-related quality of life should be further examined in future studies.},
  language  = {de}
}