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The Journey to a FAIR CORE DATA SET for Diabetes Research in Germany

  • The German Center for Diabetes Research (DZD) established a core data set (CDS) of clinical parameters relevant for diabetes research in 2021. The CDS is central to the design of current and future DZD studies. Here, we describe the process and outcomes of FAIRifying the initial version of the CDS. We first did a baseline evaluation of the FAIRness using the FAIR Data Maturity Model. The FAIRification process and the results of this assessment led us to convert the CDS into the recommended format for spreadsheets, annotating the parameters with standardized medical codes, licensing the data set, enriching the data set with metadata, and indexing the metadata. The FAIRified version of the CDS is more suitable for data sharing in diabetes research across DZD sites and beyond. It contributes to the reusability of health research studies.

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Author: Esther Thea InauORCiD, Angela DediéORCiD, Ivona AnastasovaORCiD, Renate Schick, Yaroslav Zdravomyslov, Brigitte Fröhlich, Andreas L. BirkenfeldORCiD, Martin Hrabě de AngelisORCiD, Michael RodenORCiD, Atinkut Alamirrew ZelekeORCiD, Martin PreusseORCiD, Dagmar WaltemathORCiD
URN:urn:nbn:de:gbv:9-opus-128153
DOI:https://doi.org/10.1038/s41597-024-03882-0
ISSN:2052-4463
Parent Title (English):Scientific Data
Publisher:Nature Publishing Group
Place of publication:London
Document Type:Article
Language:English
Year of Completion:2024
Date of first Publication:2024/10/21
Release Date:2025/09/01
Volume:11
Issue:1
Article Number:1159
Page Number:13
Faculties:Universitätsmedizin / Institut für Community Medicine
Collections:Artikel aus DFG-gefördertem Publikationsfonds
Licence (German):License LogoCreative Commons - Namensnennung-Nicht kommerziell-Weitergabe unter gleichen Bedingungen 4.0 International